by Noles » Tue Aug 28, 2018 10:38 pm
Hi
Yes us too, similar sort of age.
We waited too long to see a GP about it (almost a year) but thankfully on our second visit had an understanding one who referred us to a paediatric consultant GP at St George’s who prescribed similar medication to you (she didn’t think it was psychological). It was tweaked over the course of about 3 months but we saw results by the second appointment and it was sorted within the 3 months. Various books gave me suggestions and that with some bribery, tricks and the medication broke the spell. You probably already know but feet flat on the floor/a step is a tremendous help. We also blew bubbles on the toilet and whistles. I misunderstood the movicol instructions at first so wasted a while over diluting it - this is a common issue. It comes in chocolate flavour too but you need to order it in and be persistent in requesting it. I also recommend ERIC as a resource - they have a helpline - and want to reassure you that this is not as unusual as you may think and is in most cases resolved quite easily once you manage to see the right doctor. I appreciate that’s your stumbling block at the moment but I only have the name of my NHS GP consultant and you may want/need someone more specialist. But yes, it drove me crazy too. Hang in there. I barely remember it now but it was an horrific 18 months or so, mostly suffered before we saw a consultant.
Hi
Yes us too, similar sort of age.
We waited too long to see a GP about it (almost a year) but thankfully on our second visit had an understanding one who referred us to a paediatric consultant GP at St George’s who prescribed similar medication to you (she didn’t think it was psychological). It was tweaked over the course of about 3 months but we saw results by the second appointment and it was sorted within the 3 months. Various books gave me suggestions and that with some bribery, tricks and the medication broke the spell. You probably already know but feet flat on the floor/a step is a tremendous help. We also blew bubbles on the toilet and whistles. I misunderstood the movicol instructions at first so wasted a while over diluting it - this is a common issue. It comes in chocolate flavour too but you need to order it in and be persistent in requesting it. I also recommend ERIC as a resource - they have a helpline - and want to reassure you that this is not as unusual as you may think and is in most cases resolved quite easily once you manage to see the right doctor. I appreciate that’s your stumbling block at the moment but I only have the name of my NHS GP consultant and you may want/need someone more specialist. But yes, it drove me crazy too. Hang in there. I barely remember it now but it was an horrific 18 months or so, mostly suffered before we saw a consultant.