Postby zaza107 » Tue Apr 14, 2015 4:09 pm
Hi. I'd be interested in talking with anyone who is willing and has had experience with PWS. My niece was just diagnosed with this, at 3 weeks old. On the medical side, they have some very good people to talk with but I am also interested in how families have dealt with it and what we might expect.Thanks so much in advance.